Adventures of a Kidney Donor

March 29, 2010

Kiersten and Theresa’s Story

 

I work with a fun gal named Kiersten who has polycystic kidney disease like Jackie.  In 2003 her best friend Theresa gave her a kidney. Kiersten has done very well with her transplant and has a great outlook on the whole thing. This is their story which speaks for itself. I removed some details for their privacy but this article ran in our local paper:

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Theresa said she never thought twice about donating a kidney to her best friend.

Theresa  and Kiersten, both 33, have been close friends for more than 25 years.

They have been there for each other through good times and bad since they met in grade school.

“She helped me learn about unconditional love,” Theresa said of Kiersten.

So when Theresa… found out she could donate the kidney Kiersten has been awaiting for more than five years, there was no hesitation.

“This is something I can do and still be around to see the benefits,” she said. “I can live with one kidney.”

Kiersten was diagnosed with polycystic kidney disease in 1997.

The disease is characterized by the growth of fluid-filled cysts on the kidneys that reduce the organs’ function and can lead to kidney failure.

“When I first found out I had it, I had 27 percent kidney function,” Kiersten said. “The specialist put me on the list for a kidney donation because she knew things would keep getting worse.”

Last August, with her kidney function down to 4 percent, Kiersten started on home dialysis.

“I’ve never had a cyst burst or felt ill,” Kiersten said. “The only symptom I’ve had is that I’m tired, but not abnormally so. I’ve worked 40 hours a week as long as I can remember and I don’t see any reason not to do normal everyday things.”

Without the transplant, however, her ability to lead a normal life likely would be affected eventually.

There was hope when it was learned Kiersten’s husband, Michael, whom she married two years ago, had the same blood type, but further tests showed his kidney would not be a match for her.

That’s when Theresa agreed to be tested.

“I was familiar with transplants because my father had a liver transplant in 1998,” Theresa said. “But I didn’t know that a person who was not blood-related could donate a kidney until Mike was tested.”

Last November they got the news that Theresa could be the donor. Surgery is scheduled for Monday at the University of Michigan Hospital.

“If I could do this for her I wouldn’t think twice about it and, from her reaction, that’s the way she felt, too,” Kiersten said. “She’s just doing what she felt was needed.”

Theresa ’s family moved…but the 45-mile distance between them didn’t dull the friendship.

While they say they have seldom argued, there is one big area of disagreement. Kiersten is a Michigan State University fan while Theresa favors the University of Michigan.

“She was a Spartan fan until she moved…” Kiersten said. “I think they brainwashed her down there.”

Go to List of Resources on Kidney Donation

March 27, 2010

Tests

LOGISTICS

So… a few years ago Jackie and I were dismayed to find out that we aren’t the same blood type.  I can’t be a direct kidney donor for her. MAJOR BUMMER. Then we read that Johns Hopkins was performing paired kidney donation. These are simultaneous surgeries where they organize several recipients and donors and match the blood types and get kidneys with the correct blood type to recipients. Cool. So the donor is really helping TWO people, their direct “donee” and also the person in their life who needs a new kidney. Very cool. Then we got even better news, closer to home University of Michigan is now performing paired kidney donation surgery. Woo-hoo! This surgery is very interesting, sometimes it involves eight people who have simultaneous surgeries.

Living kidney donation rates are down, and the waiting lists are getting longer. So the need is great.

TESTS

Jackie passed her tests for transplantation. HURRAH!!! Now I am getting the first of my tests. I just saw my doc for the annual fun of a pap test. My annual mammogram is scheduled. (GIRLS GET YOUR MAMMOGRAMS. Breast cancer has impacted my family in two very sad ways.) I had a blood test for cholesterol and sugar levels. My doc says I am in good health and she sees no problem with a kidney donation. So hopefully we are on our way…

 

Go to List of Resources on Kidney Donation

Paired Kidney Donation

This is not about ME. Not even about Jackie. It’s about inspiring people to understand more about kidney disease, to donate to the National Kidney Foundation, or to even donate a kidney! Here is our story.

THE BEGINNING

So this story begins in 1974.  Jackie and I had last names that started with the same letter so due to the alphabetical seating chart we sat next to each other in Mr. R’s Social studies class in 7th grade. We have been friends ever since. Jackie is the only person I see from junior high or even high school for that matter. At the age of 13 we made a pact. When we got married and had kids we would be each other’s maid of honor and godmother to the first baby for one another.

Years passed and Jackie married a very nice man named Doug and they have a wonderful son named Justin.  As predicted in our junior high days, I was maid of honor at her wedding and I am Justin’s godmother.  Jackie would have done the same for me but alas, I never married or had any children.

THAT DAMN KIDNEY DISEASE

Kidney disease doesn’t define who Jackie is.  It just happens to be something she has to deal with.  And not just with herself.  Unhappily it has touched her extended family several times over.  It took the life of her mother and uncle and yet another uncle has it.  Her mother lived with her the last few years of her life and Jackie took care of her while dealing with her own illness.  Jackie doesn’t complain or feel sorry for herself, she gets on with life and is the “rock” of her family.

Jackie has been on dialysis too long.  It has been difficult for her physically and mentally. So simply put, she needs a kidney. Since Jackie is more like family than just a friend, it’s natural that I would give her a kidney.  She didn’t ask me, I offered.

PSYCHOLOGY OF DONEE AND DONOR

Let me say it is MUCH more difficult to be in the position of needing a kidney than to offer one. If the situation was reversed, I know Jackie would do the same for me. What Jackie goes through with dialysis, the complications of the graft and the effects of kidney disease is a lot worse. I think Jackie has some “donee” guilt that I wish she didn’t.  Hopefully that will evaporate in time.

I am not taking this lightly, I know it is serious surgery, but I have read a lot about it. (There is an advantage to being a librarian with access to all of those health articles!) It is very safe to be a kidney donor.  Darn, I won’t be able to serve in the military or play football afterward though. I really have no fear or hesitation.

MY MOTIVATION

I am doing this for Jackie of course.  Also for her husband Doug and her son Justin. Doug is a wonderful guy who accompanies Jackie to every dialysis session.  He took care of his mother-in-law even to the point of carrying her to the car when she was very weak.  Justin is a wonderful young man who is in college now. We look forward to holding his children in our arms just as we held him as a baby.

But who am I doing this for the most? ME. I want Jackie around until we are little old ladies. I have a strong vision of us both as old ladies still going out to lunch and gossiping. It is going to happen.

Jackie is a better writer so be sure to visit her blog on this!

Go to List of Resources on Kidney Donation

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