Adventures of a Kidney Donor

About Me

I got involved with kidney donation when one of my best friends developed kidney disease and needed a kidney. I wasn’t a match for her but I looked into paired donation as a way to help get her a kidney. She ended up getting her new kidney from an unexpected donation and didn’t need me after all. I decided to still be a kidney donor because the need is so great. On August 12 2011 I donated my kidney to someone in an anonymous donation. I hope this blog helps donors and recipients as they make their journey. I am a research librarian so I try to include a lot of resources to help people find information about kidney disease and donation. Hope you find this blog useful!

Anne

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8 Comments »

  1. Can’t believe there are no comments. Great gift, Anne! I am considering being a live donor for my brother, who is in end stage renal failure due to a hereditary kidney disease. He hasn’t gone on dialysis…yet. Kidney function is about 18% right now. Our dad was on dialysis for a year before receiving a kidney transplant from a cadaver donor in 1990. Unfortunately, dad passed away in 2001. Have already had the cross match test and we are a match. So far, we are a a 3/6 and will probably end up higher. At least a 4/6. Your blog has been a great source of info.

    Comment by Annette — December 29, 2011 @ 4:56 pm |Reply

    • I am so glad that you have found some helpful info here. It’s great that you are considering helping your brother, good luck to both of you!

      Comment by anne315 — December 29, 2011 @ 10:08 pm |Reply

  2. HI! My name is Marina. I have always wishes I could be a living donor, but due to a cancer diagnosis I can not donate. I still felt strongly that living donation is important, and becoming more so every day. I’m not sure if your aware of the current statistics, but they are scary! At this point 19 people die each day while waiting for their transplant.

    I was still pondering what I could to to help while working as a Wish Ambassador for Wish Upon A Hero. One of my fellow WA’s was so moved by one of our wishes that she decided to become a living donor. During the evaluation she was diagnosed with cervical and ovarian cancer. She was devastated, not by the cancer, but by the fact that she could not donate her kidney and help this woman. As a cancer survivor and someone that felt driven to help encourage living donation I offered to do what I could to help and began the search for a donor. Soon I had another recipient in need and a handful of people in various stages of the donation process, some deciding if it was right for them, and others being tested. It seems I had found my calling.

    I still am a Wish Ambassador for Wish Upon a Hero, and specialize in organ donation wishes. On a whim I started a Facebook page called KidneyWishes and a Twitter account to go with it, and in no time had a following of both donors and recipients. Now I am starting a blog that in time I hope will turn into a website where recipients and possible donors learn, connect, and relax a bit. It will also be a place that those in need of donors can post their stories and get the word out there, in hopes of finding donors.

    For me the hardest part in all of this, is that I’m not a donor and can not give a first hand account of what it’s like. I was wondering if you could offer me some advice. I was wondering what information or resources you wish you would have known about before you donated. What would have helped you, either through the process or in making the decision to become a donor? What information would you pass on if you could to someone thinking about becoming a donor? Also would you mind if I link to your blog?

    I am connected with Living Donors Online and they have kindly offered to their donor buddies program to any of my potential donors, which is a huge help. I work with Chaya Lipschutz, a well known kidney matchmaker, of of KidneyMitzvah assisting her with various things from finding donors to passing along resources or helping a donor get a free flight to the transplant hosp for the surgery. I have to admit I love what I do!

    I hope to hear from you soon!

    Marina
    marina_gallagher@wishuponahero.com

    Comment by Fairy Godmother — January 29, 2012 @ 12:18 pm |Reply

  3. Wow, what a great site this is! Right now I am on the list of possible donors for a very dear friend. He is now only 8%, and a group of us are lined up for the testing. First round of testing on Tuesday. I am going to recommend this site to everyone. What an amazing thing you have done anne. It is truly inspiring.

    Comment by megan harvey — February 16, 2012 @ 9:22 pm |Reply

  4. Hello, I’m Chelsea, I’m 20 and about to have a nephrectomy as a result of kidney dysfunction, I just wanted to say your blog is brilliant, and its incredible that you donated your kidney anonymously as many wouldnt! Its nice to know that there are people so generous in the world particularly when I have kidney problems myself. You’ve also calmed my nerves quite a lot about the actual surgery itself, so thank you!

    Comment by Chelsea Johnson — April 4, 2012 @ 7:14 pm |Reply

    • Wow Chelsea, that is the nicest thing to hear. I wanted this blog to help people. I wish you the best with your surgery!

      Comment by anne315 — April 4, 2012 @ 7:32 pm |Reply

  5. Anne, this is a wonderful blog to read. My mom is waiting for a kidney now. We are hoping she can find a donor for her soon. Its amazing to me to think of others donating a kidney to a complete stranger! What a blessing it is to so many people. I also had no idea how BIG of a need there is for kidney donors!

    Comment by Sarah Cooper — August 7, 2014 @ 5:01 pm |Reply


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