Adventures of a Kidney Donor

July 30, 2014

The Living Donor Protection Act

Filed under: Support — by anne315 @ 9:58 pm
Tags: , ,

organ donorJust a quick post (my laptop is on its last legs, new one on the way!) to say that a VERY important piece of legislation is pending in Congress. I received this in my email today. Contact your senators and representatives now!


Today, July 30th, The Living Donor Protection Act (H.R. 5263) was introduced by Representative Jerrold Nadler (D- NY) along with Representative Michael Burgess (R-TX).  This bill, if passed, will protect living donors from insurance discrimination, grant leave from work to recover from transplant surgery, and promote education about living donation.  Email your Members of Congress now to ensure these lifesaving heroes are protected.

The bill will protect living organ donors’ access to life, disability and long-term care insurance by prohibiting insurers from denying coverage or from charging higher premiums.  The bill also clarifies that living organ donors may use time granted through the Family and Medical Leave Act (FMLA) to recover from transplant surgery. Furthermore, the bill requires the Secretary of Health and Human Services to educate the general public on the benefits of living organ donation and the rights of living donors.

H.R. 5263 will help kidney patients by removing barriers to living organ donation and thereby strengthening access to transplantation.  Most notably, it protects those life-saving heroes who choose to be living organ donors.  Living donation helps reduce the amount spent on dialysis and other expensive medical treatments for individuals with kidney failure.  However, the bill can’t pass without your support!  Click here to ask your Representative to cosponsor H.R. 5263.

Thank you,
Bruce Skyer
Chief Executive Officer
National Kidney Foundation

Go to List of Resources on Kidney Donation


February 4, 2012

Support for Donors and Recipients

If you are a potential organ donor or recipient or have already received or given an organ, you may need support. It is sometimes good to hear about other people’s experiences and to share yours. When I was preparing for donation I read a lot of blogs that showed details on donor’s experiences.

Donors: Living Donors Online is a good place to read about the experiences of others or to share yours. It has message boards and also links to blogs and donor stories. LDO covers all kinds of organ and tissue donation. Also check out national organizations like the National Kidney Foundation.

Recipients: To see if there are online stories, contact your local affiliate of national organizations like the National Kidney Foundation.

If you like to see people tell their stories, go to YouTube and you will see many videos of donors and recipients.

To meet with other donors and recipients, this list has support groups in several states: Transplant To see if there are support groups in your community, contact your local affiliate of national organizations like the National Kidney Foundation. Hospitals and doctors often have support group information as well.

Here in Mid Michigan, we have the Transplant Support Group/Lansing Area. It meets the second Thursday of each month at The Peoples Church, 200 W. Grand River, East Lansing, Michigan in the Centennial Room, lower level off the Social Hall. Upcoming meeting dates are: February 9, March 8, April 12, and May 10. For more information Contact Joan C. Smith at (517) 351-2175 or

The Transplant Support Group shares experiences and answer questions. Discussion is treated confidentially by the support group so people can feel free to share fears, concerns, successes and failures as it relates to the transplantation process. The group serves pre- and post-transplant patients, such as – eye, heart, lung, liver, kidney, bone marrow candidates and recipients.

The group would like to invite patients and caregivers to join them. You do not have to have had a transplant to come to the meetings. It is open to people who reside in the Lansing area and beyond. Such support is provided without regard for race, color, gender, national origin or faith.

Go to List of Resources on Kidney Donation

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