Adventures of a Kidney Donor

September 12, 2010

Polycystic Kidney Disease

Filed under: Medical — by anne315 @ 7:43 pm
Tags: , ,

Jackie has Polycystic Kidney Disease (PKD. ) Her grandfather, mother and uncle have passed away from PKD and its complications. Other members of her family have been diagnosed with it.  PKD SUCKS! The only remedy for PKD is to get a new kidney.

The PKD Foundation has a lot of info. (see below) I was astonished to learn that PKD affects an estimated 1 in 500 people. It occurs in any sex, age, race or ethnic origin.

Autosomal dominant (ADPKD) is one of the most common life-threatening genetic diseases…It does not skip a generation. There is usually a family history of ADPKD.  Parents with ADPKD have a 50 percent chance of passing the disease on to each of their children.

 A normal kidney is the size of a human fist and weighs about a third of a pound. However, with the presence of PKD, cysts develop in both kidneys. When many cysts develop, the kidneys can increase in both size and weight, sometimes weighing many pounds each.  There may be just a few cysts or many, and the cysts may range in size from a pinhead to the size of a grapefruit.

The Gale Encylopedia of Medicine (see below) defines PKD:

Polycystic kidney disease (PKD) is one of the most common of all life-threatening human genetic disorders. It is an incurable genetic disorder characterized by the formation of fluid-filled cysts in the kidneys of affected individuals. These cysts multiply over time. It was originally believed that the cysts eventually caused kidney failure by crowding out the healthy kidney tissue. It is now thought that the kidney damage seen in PKD is actually the result of the body’s immune system. The immune system, in its attempts to rid the kidney of the cysts, instead progressively destroys the formerly healthy kidney tissue.

Famous People who have or had PKD:

  • Steven Cojocaru
  • Neil Simon
  • Erma Bombeck
  • George Lopez (?) Not confirmed but he is described as having genetic kidney failure, PKD is the most common cause of genetic kidney failure

 To read more:

**Requires a Michigan driver’s license or check with your local library.

Go to Resources on Kidney Donation

1 Comment »

  1. I started dialysis in febuary. My father all but one of his brothers his mom and brothers died. I have low bp and not retaining fluid…
    Friar family in florence is as far as i know. Any information before that could help

    Comment by renita richards — November 4, 2010 @ 8:57 pm |Reply

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